About forget ME not
Hi and welcome!
I am Adelia, the founder of "forget ME not".
I am a patient with ME/CFS who has lived with this disease for over 10 years. My condition is so severe it leaves me mostly housebound and bedridden. I am however still able to be a little bit active online on social media and in Second Life.
For those who don't know, Second Life is a virtual 3D world where you can meet and connect with people from all across the globe, create and sell/buy virtual goods and more. Throughout the years, Second Life has also become a place where people raise awareness and fundraise for various causes that they personally care about. The virtual currency people donate, can then be cashed out and turned into real dollars to help real people.
I have seen many different kinds of fundraisers in Second Life, but I have never seen anyone fundraise for ME research, or even raising awareness.
I'm changing this.
ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) is a debilitating and complex disease characterized by severe, debilitating fatigue that is not improved by rest and is made worse by physical or mental activity. But that is not all. Patients suffer from many other debilitating symptoms in addition to this, for example pain, muscle weakness, cognitive dysfunction, sleep disorders and more.
Many people with Long COVID are now being diagnosed with ME/CFS. An estimated 20 million people are affected worldwide. It’s important to note, ME is underdiagnosed and underreported, meaning that the actual number of people living with the condition is likely much higher than the estimate. Sadly, this number is growing every day.
Currently, ME/CFS and related chronic, complex conditions are not well understood by the majority of the medical community, often dismissed and considered psychosomatic. For the past decade, Open Medicine Foundation (OMF), a 501c3 non-profit, has been working to fill this knowledge gap by funding and facilitating cutting-edge research into ME/CFS, Long COVID and associated chronic complex diseases. The goal at OMF is to bring people back to good health by helping to find a diagnostic tool, treatments towards a cure and educate as many doctors as fast as possible.
Within my project "forget ME not" I will be raising awareness and funds for the ME research both in the virtual world of Second Life as well as on social media, to the best of my ability. Whenever you make a donation in any of our events and activities, all proceeds go to OMF only. No exceptions. If you have any doubts, please see the authorization letter below, or click the button to visit OMF's website for more information.
The ME research has always been highly underfunded, and funds are needed to make real breakthroughs. We hope you would like to join us on this journey and make a difference. We ask that you please "forget ME not", as we have already been ignored and neglected for decades.
If you would like to get involved and contribute to this project, find out how HERE!
Adelia Meli, Founder of "forget ME not"
towards ME research
Raise awareness through
virtual events and activities